As a parent of an adult son on the spectrum, he also understands the diverse needs of the autism community and the importance of providing a variety of options and solutions to best support the people we serve. Please enter your location to help us display the correct information for your area. I walk for Autism Speaks, a mom tells me over the phone, but I dislike the organization. Arent you supposed to be helping people on the autism spectrum? On the surface, its a nonprofit organization that seeks to provide support for individuals with autism and their families, raise awareness for autism, and further research on autism and its causes, but a deeper look takes a troubling turn. This is causing more damage in terms of the costs of crime and costs of police, courts and supporting prison populations in society. Base Salary ( GBP) 10% 29k MEDIAN 47k 90% 83k The average salary for a Chief Executive Officer (CEO), Non-Profit Organization is 46,821 Base Salary 29k - 83k Bonus 998 - 15k. About 1 in 6 children with autism have been asked to leave a child care or preschool setting, new research finds, and the experience has long-lasting consequences. Socialization is the number one way to open the doors to ones future, independence, activities to meet a individuals needs etc. Brian Harper, chairman of the board of directors, Autism Speaks, said, The last 18 months have been especially hard in the autism community, with people suffering from significant isolation and dislocation. Indeed. Keith is an accomplished business leader and executive that has a proven track record of success in driving organizations forward. We do this through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. message, contactez-nous l'adresse A.S. Business Based on 55 salaries Director 13 salaries Manager 11 salaries View More Product & Project Management Based on 14 salaries Senior Coordinator 5 salaries Coordinator Emailus. Autism Speaks had a big fundraiser that day. For those interested in acquiring the original data from the source, heres where our data comes from: Enter a nonprofit's name, a keyword, or city, https://projects.propublica.org/nonprofits. Autistic people have internal gifts and abilities that need to be pulled out and encouraged, Debbie Denenburg, Im not a burden to cure most of it [the money for research] goes into finding a cause, prevention, and a cure. Ci PRINCETON, N.J., Oct. 7, 2021 /PRNewswire/ -- Autism Speaks, the nonprofit organization dedicated to promoting solutions across the spectrum and throughout the life span for people with autism and their families, today announced that Keith Wargo has been named president and CEO of the organization. March 30, 2023. It is obvious to me that many more would be better-served if AS restructured their operations, broadened their points of emphasis, and opened their hearts to a more humane and positive approach to inclusion than they are currently exhibiting. Autism Speaks Inc. is the largest autism advocacy and research organization in the United States. May her words shine a light on the potential AS has to improve and enhance their Good Works. The comments you get are going to be from the persons point of view from their degree of autism. I post a lot of their items on my FB page and in my newsletter. Si vous continuez voir ce Competitors CEO & Executives Mission Statement Part Time Jobs. Its an enormous and prominent organization, and it receives a high amount of attention and donations. om ons te informeren over dit probleem. The video was removed after backlash and Autism Speaks claims it is not part of their current message and campaigns. However, the damage was done the moment one of the leading organizations on autism released a video with horror film vibes, which demonized autism, portrayed it as a destroyer of families and livelihoods, and made it sound like something to be feared. This data release includes only a subset of what can be found in the full Form 990s. Compare pay for popular roles and read about the team's work-life balance. Is AS open to working with those groups to broaden their perspectives? Many members of the autism community describe autism as a part of who they are and have reiterated the sentiment of wanting to be accepted, not cured. On Twitter, Autism Speaks recent #MSSNG hashtag as a platform for genome research was responded with by #NOTMSSNG and #ActuallyAutistic hashtags by autism advocates. As the COO, Joe led his peers in the integration of a number of innovative, transformative initiatives, including; redirecting United Ways community investments into cutting-edge place based strategies, negotiating and leading a number or regional consolidations, implementing a high-net worth donor strategy and launching a digital donor engagement program. We are truly thankful, for the services they made available for us, when we had nowhere else to go, Jennifer Gray. He was central to the 2008 passage of the World Autism Awareness Day resolution at the United Nations and subsequently led the development of the Global Autism Public Health (GAPH) initiative that provides technical support to country governments to enhance autism awareness, advocacy, research and services worldwide. Reports have suggested as little as 14% of their annual budget goes towards providing Family Services and their provision of family grants. Autism Speaks was first founded in 2005 by Bob and Suzanne Wright after their grandson was diagnosed with autism. She suggested an art exhibit. If the primary goal is to make money, that strategy is effective. Probably the two most common misconceptions about Autism Speaks are people who walk are walking for autism supports in their own community and autistic people benefit from the majority of money raised. Jennifer holds a bachelor's degree from Concordia College and a master's degree in Nonprofit Management from New School University. Were not an epidemic. All Rights Reserved. The Autism Collaboration, Accountability, Research, Education, and Support Acts of 2014 and 2019 (Autism CARES) and earlier laws that authorize autism research, surveillance and training. The downside is the harm done to the psyches of autistic people and their families. In writing this article, I talked to many people about Autism Speaks. Many of Autism Speaks most damaging actions, such as trying to cure autism and its I Am Autism video, took place years ago. I also see them helping developing countries where autistic children are very limited in their supports and potential outcomes. See the metrics below for more information. Earlier this week I wrote a blog about my problems with their resource directory and response team. They have a history of very negative messaging about autism, from the infamous I Am Autism video, to pushing the notion of an autism epidemic, to founder Suzanne Wrights many offensive statements about her grandson being stolen away by autism, Steve Silberman. Kathleen Tehrani, founder of Autism Brainstorm, On one hand, I know that AS is the ONLY presence for awareness in many foreign countries. Autism Speaks might sound appealing to individuals and families seeking to raise awareness or receive support. It is notable they have no representation from Autistic people on their board. During her tenure, she has elevated volunteer engagement with the launch of the executive leadership council structure nationwide and centralized operations activities of the field, allowing the front-line team to focus on critical community engagement and collaboration. $451,121: Angela Geiger, President (beginning February, 2016), $365,627: Robert H Ring, Former CSO (through January, 2016), $280,735: Lisa Goring, Chief Program and Marketing Officer, $277,794: Andy Shih, SP Public Health Research, $262,284: Peter Morton, VP Corporate Development, $243,724: Karen Robinson, CFO (beginning January, 2016), $233,843: Elizabeth Feld, Former President (through February, 2016), $220,633: Paul Wang, SVP, Medical Research (through November, 2016), $210,661: Amy Schoeman, Chief HR Officer, $204,556: John Gruber, EVP Finance and Admin (through January, 2016), $204,436: Donna Murray, VP Science Clinical Programs. No other organization is addressing this. Autism is not a disease. We also link to copies of audits nonprofit organizations that spent $750,000 or more in Federal grant money in a single fiscal year since 2016. Contrary to what many misinformed individuals think, autism is not considered a disease or a medical condition. With responsibility for the Autism Speaks Walk, TeamUp and other peer-to-peer and special events, Jennifer leads the largest revenue operation of the organization. Mr. Wargo joins Autism Speaks after a long and successful career in finance on Wall Street. As a Freelancer Writer she hopes to give readers the same comfort and enjoyment that she finds in all things nerdy and noteworthy, as a blogger she enjoys snarking on YouTubers and reality stars, and as a future novelist she hopes to raise awareness for child abuse through literature. Keith Wargo joined Autism Speaks as president and CEO in October 2021. From https://projects.propublica.org/nonprofits. 146 *2020 compensation . Over the course of his long and successful tenure, he developed a proven track record of building effective teams, partnering with an array of stakeholders to tackle complex issues and helping to grow and scale multifaceted businesses across multiple industry sectors. As CMCDO, she successfully integrated the organization's fundraising and marketing initiatives. Glassdoor has salaries, wages, tips, bonuses, and hourly pay based upon employee reports and estimates. The CEO called me and asked for a painting as a donation. I look forward to curating an exhibit that represents autistic voices. However, its clear that, under the surface, they havent changed much. To find resources, join an event or make a donation, go to www.AutismSpeaks.org. Brian Kelly didnt mention partnering with the autistic community. Salary: $60,000 Joni and Friends Avg. Prevention at this point is a prenatal test, similar to what is used to test for Downs syndrome. las molestias. When I found out how many autistic people were against it, I stopped supporting it and turned my attention to local organizations like Autism Tree Project Foundation that I can personally see making a difference in peoples lives, Alex Tescher. 45.3 % $40k-60k. Not to imply all board members of Autism Speaks are self-serving. There are many, many reasons us more mainstream stratta in the community who embrace our sons and daughters autism vehemently dislike much about this organization. Nous sommes dsols pour la gne occasionne. . envie um e-mail para Organizations making less than $50,000 dont have to file either form but do have to let the IRS theyre still in business via a Form 990N "e-Postcard.". The Westchester/Fairfield Walk had net proceeds of $968,000, 15% of which was This well-researched article exposes the illusion of what Autism Speaks is really about Their concept appears to have come from good intentions, yet we all know the old adage, The road to hell is paved with good intentions. Other words of wisdom are more appropriate here: Hell is full of good meanings, but heaven is full of good works.. Keith is an accomplished business leader and executive that has a proven track record of success in driving organizations forward. Theres no set number for what a nonprofit CEOs wage should be, but most can agree that a yearly salary of $600,000+ seems excessive. Stephanie Tihanyi is working on a piece of art to express her frustration with Autism Speaks. Mike Geller And parents need that information, Monique Blakemore, Most of the people who participate in Autism Speaks walks are *not the enemy. Disculpa #LIUB alternate is #Walkinred; #AutismSpeaks -#BoycottAutismSpeaks. 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